Services Approach About Selected Work Discuss a project
SELECTED WORK

Selected Work & Impact

Niesha Neal brings professional expertise and lived experience to healthcare consulting, public-health communication, patient and community engagement, and strategic advisory work. Her work helps healthcare organizations, researchers, nonprofits, and community partners incorporate patient perspectives into programs, policies, educational resources, quality measures, and healthcare decisions.

Portrait of Niesha Neal, founder of Exhale and Empower
Niesha Neal, BS, CCHW, MCPC
Founder, Exhale & Empower
Patient Engagement • Health Equity • Plain-Language Communication • Kidney Care • Strategic Advisory
SELECTED PROJECTS & CONTRIBUTIONS

Where expertise meets lived experience.

Four examples of how patient and community perspective shapes better decisions, programs, and communication.

Patient Engagement and Decision-Support Design

Kidney Transplant Compare

Contributed patient expertise to Kidney Transplant Compare, a decision-support resource designed to help kidney patients understand and compare transplant centers. Provided input on patient usability, health literacy, educational content, and the information patients need when evaluating transplant options.

Role Patient subject matter expert and IPRO ESRD Network 9 Medical Review Board representative
Patient-centered resource design Health literacy Transplant access Shared decision-making Patient usability
The platform has served more than 16,000 patients. The American Association of Kidney Patients presented the 2024 Dominick Gentile, MD Memorial Award to IPRO ESRD Network 9 for the Kidney Transplant Compare program.
Learn About Kidney Transplant Compare ↗
Public-Health Writing and Policy Communication

Published Kidney-Care Policy Commentary

Authored a published letter to the editor calling for congressional passage of the Kidney Care Access Protection Act and continued Medicare investment in dialysis access, treatment innovation, and quality of care. The commentary translated the consequences of federal healthcare policy into clear, patient-centered language grounded in direct kidney-care experience.

Role Author and kidney-care subject matter expert
Public-health writing Legislative communication Medicare policy Dialysis access Patient-centered policy analysis

“Kidney Patient Implores Congress to Pass Kidney Care Access Protection Act”
Published policy commentary. Published by The Reporter on September 2, 2026, and subsequently featured by Dialysis Patient Citizens.

Read the commentary ↗
Quality Measurement and Strategic Advisory

CMS IOTA Model Technical Expert Panel

Selected to serve as a patient representative on the Technical Expert Panel supporting quality-measure development for the CMS Innovation Center's Increasing Organ Transplant Access Model. Contributes expertise related to health-related quality of life, patient-reported outcomes, transplant equity, health literacy, measure usability, and implementation feasibility.

Role Technical Expert Panel member and patient representative, 2025–2027
Patient-reported outcome measures Kidney transplant quality Health equity Patient-centered measurement Measure implementation
Stakeholder Engagement and Strategic Advisory

Federal Kidney-Care Policy Engagement

Participates in national kidney-care policy engagement with lawmakers and healthcare stakeholders, bringing patient and community perspectives into discussions concerning dialysis access, Medicare protections, transplant access, treatment innovation, and patient choice.

Relevant roles Senior Patient Ambassador, Dialysis Patient Citizens. Ambassador, American Association of Kidney Patients. Congressional advocacy participant. Kidney-pancreas transplant recipient and kidney-care subject matter expert.
Legislative engagement Stakeholder communication Patient and community representation Kidney-care access Medicare policy
CREDENTIALS

Additional Leadership and Recognition

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    IPRO ESRD Network 9 Medical Review Board

    Patient Representative, 2019–Present

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    IPRO ESRD Network 9 Board

    Former Board Member, 2022–2024

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    American Association of Kidney Patients

    Ambassador

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    Dialysis Patient Citizens

    Senior Patient Ambassador

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    PATIENTS Professors Academy

    Class of 2026

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    Media Recognition

    Featured by Forbes and AAKP's RenaLife

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    Certified Community Health Worker

     

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    Master Certified Professional Coach

     

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    BS in Criminal Justice

    Minor in Rehabilitative Services

Bring patient and community expertise into your next project.

Exhale & Empower partners with healthcare organizations, researchers, nonprofits, and community partners on patient engagement, plain-language content review, strategic advisory work, and healthcare communication.